N of your second individual who is not par ticipated inside the investigation. That is now debated in our Parliament regarding a brand new legislation permitting or not enabling this to happen. The projects that use this genetic database is super vised by the Information Commission along with the Ethics Committee, so the use of this genetic database does not cause any challenges. [Slide 10] The third database consists of wellness data supplied by the GJ103 (sodium salt) people partici pating in certain analysis projects. They gave explicit consent at the same time as biosamples and blood samples, in addition to their common facts. This, as well, doesn’t result in complications due to the fact it is inside the framework of the Information Commission as well as the Ethics Commission. Having said that, in regards to the CHD, an issue arises. [Slide PubMed ID:http://www.ncbi.nlm.nih.gov/pubmed/20072628 11] The concept of your CHD was 1st presented in 1998. The concept was to extend the database inside the deCode Genetics to incorpo rate all well being information and facts of every citizens. The organization presented the concept to the Division of Well being with political backup. The politicians worked for any speedy course of action inside the parlia ment and presented a proposal for any new legislaJMAJ, March / April 2014–Vol.57, No.CENTRALIZED Wellness DATABASES: LESSONS FROM ICELANDSlideSlideSlideSlidetion within the spring of 1998. Having said that, their program did not operate due to the fierce opposition by doctors and research committees generally. [Slide 12] Inside the proposal with the CHD, both the existing and future details might be transferred from well being institutions to the CHD. A few of the information and facts at that time were already stored as electronic information, but other people have been nevertheless paperbased. The original notion was pretty farstretching, attempting to place all facts from heath records–not only the accounts of physicians but nurses or social workers, and also hospital priests. But soon, these who proposed the concept realized that the concept was not sensible, and through the subsequent 6 months, some alterations had been made. The idea was not simply to enter numbers, but also to produce solutions from text. After processing inside the database, pieces of info is usually sold to any one who’s willing to buy and meet the standards. That was to become accounted for by independent regulatory committees. On the list of most notable occasion was that the Minister of Overall health expelled the current Ethics Committee and made a new one–so the debate extended for the worlds of investigation, ethics, and politics. Among the list of ideas was for the health authorities to possess no cost access towards the data; they already had plans of a mutual wellness records for the entire population. [Slide 13] There were some arguments sup porting the CHD. It would develop scientific information on wellness by utilizing several data mining to discover unknown correlations. It can also develop jobs in investigation communities. It is going to develop revenues for the society, which was one of the most well-liked arguments for the CHD. The deCode Genetics, obviously, will acquire revenuesJMAJ, March / April 2014–Vol.57, No.Sn dal JSlideSlidefrom the CHD, but this point was not put for ward very a great deal in the debate. [Slide 14] There had been also arguments against the CHD. There have been also many issues in creat ing helpful information. It was very unthinkable for many medical doctors that their patients’ details will be sold to thirdparty companies by a pri vate firm every time they see a patient and put details in his/her record–just unthink in a position for the majority of them. So, those doctors fiercely opposed the idea by way of the Ice.